To Health and Human Services Secretary Robert F. Kennedy Jr.—and contrary to medical consensus and decades of study—autism is an appalling, family-destroying “disease.” To pediatric psychiatrists and autism experts like Vanderbilt University’s Zachary Warren, speaking Wednesday to National Public Radio, autism “isn’t a single thing; it is a word we use in an attempt to capture a spectrum of behavioral strengths, differences, and vulnerabilities.”
During a startling recent press conference in which Health and Human Services Secretary Robert F. Kennedy Jr. pledged to establish the “cause” of autism by September, the HHS secretary sparked further outrage—by, as my colleague Anna Merlan reported yesterday, saying the following:
“These are kids who will never pay taxes,” Kennedy declared. “They’ll never hold a job. They’ll never play baseball. They’ll never write a poem. They’ll never go out on a date. Many of them will never use a toilet unassisted. We have to recognize we are doing this to our children.”
Kennedy’s years of anti-vaccine activism have centered in large part on autism, framing it as a “preventable disease” and epidemic driven by environmental contaminants. A lawyer by training, with no medical background beyond freelance taxidermy, Kennedy has consistently peddled misinformation about autism and autistic people, presenting the condition as a vaccine-driven scourge.
Increasingly, Kennedy has papered over some of the most problematic elements of his crusade—and licensed himself to ignore opposition and criticism from autistic people—by insisting that he’s referring to “profound” autism, or autism with high support needs. It’s a distinction that he’s happy to deploy when it serves his case and to gloss over when promising to end autism once and for all; and, by definition, it excludes his autistic critics from the conversation.
A crucial slogan of the disability rights movement is “Nothing about us without us”—so it seemed appropriate to get the reaction of an autistic poet. I spoke with Elizabeth McClellan, an award-winning poet, attorney, and legal educator based in Memphis, Tennessee.
Could you tell me about yourself and your work as a poet?
I have been publishing poetry professionally since 2009, on and off. I primarily do genre poetry, which is poetry that falls sort of in the speculative fiction, science fiction, fantasy, [and] horror spaces. I have a book of horror poetry that will be coming soon from Kith Books that’s found poetry from Stephen Graham Jones’ My Heart Is a Chainsaw. Poetry doesn’t generally pay for itself, most poets are not just poets. That’s why I supplement it with my work as an attorney.
So you’re living evidence that someone can be both autistic and a poet.
I am not only living evidence that someone can be autistic and a poet, I will challenge RFK Jr. to write a poem as good as me any day of the week, because I don’t think he can do it.
“He’s trying to eradicate support, especially with education, that could help people live the kind of lives where they do get to write poetry.”
What was your reaction to Kennedy saying that an increase in autism diagnoses is bad in part because autistic people can’t “write a poem”—not that there’s anything wrong in more people getting diagnosed.
It’s completely dehumanizing. He didn’t lead with poet. He led with they’ll never pay taxes, they’ll never have a job. It’s just “useless eaters” rhetoric. And then he fluffs it up with, they’re they’ll never have a poem. They’ll never play baseball. Some people won’t, some people have higher support needs. They are still people. They have a right to live and a right to dignity. And that’s not what he wants for us. He is using the straight-up eugenicist playbook. People who can’t go to the toilet by themselves are still people. People who can’t write a poem are still people. I doubt [RFK Jr.] can write a poem, but he’s still a person.
You can’t eradicate autism without eradicating autistic people. It’s genocidal rhetoric against us that’s justified by “autism destroys families. It destroys children.” No, it doesn’t. It’s bias against autistic people.
He is taking an axe to the Department of Health and Human Services, [which] means that a lot of autistic people are not going to have the support that they need to thrive and survive. Now, I’ve had support to thrive and survive. I don’t need a whole lot of support to do what I do, but I need it, and I probably would have had a less miserable childhood if the diagnosis were more available. [RFK Jr.] falls into using language like Asperger’s, which, of course, was the distinction that was used to decide who would die and who would work under the Nazis.
“What does he do? He chainsaws the heads off dead whales and leaves bear cubs in Central Park.”
There are many autistic poets. There’s already a call for a special issue of poetry by autistic poets that will pay the poets just to do an autistic resistance. There are poets writing short poems just to help all of us recover from this person with a great deal of power saying our lives are worth nothing. He’s trying to eradicate support, especially with education, that could help people live the kind of lives where they do get to write poetry.
With poetry, you have to be creative. RFK Jr’s hatred towards autistic people seems to be the opposite of that.
He’s the antithesis of creativity. I’ve never seen his book of collected poems. Who are you to tell us that we can’t write poetry? When you don’t write poetry, that’s not a thing that you do. You’re not a poet. You don’t get to tell us who gets to be poets. I know so many autistic poets. I know so many poets with various kinds of neurodivergence and that adds to the way that we see the world in our unique way, and that adds to our unique voice as poets. Allistic people can write poetry too, but we have a different way of seeing the world, and that inspired some of us to take up this particular art form. Others of us paint. What does he do? He chainsaws the heads off dead whales and leaves bear cubs in Central Park. And I don’t think it’s performance art. I think it’s just that he’s creepy. What has he ever really done, other than have a last name?
What this is all really about is capitalism. “Oh, they’ll never go to the toilet by themselves. That’s a miserable existence.” Plenty of people need assistance going to the bathroom—whose lives are rich and full, who will write poems, who will paint pictures, who will do things, and he doesn’t actually care whether we’re creative or not. He doesn’t actually care whether we’re writing poetry or not. It’s just the same old rhetoric over and over again that we get from eugenicists
This interview has been lightly edited for length and clarity.
